Stressed dot com – 28 July 2014

sometimes my son leaves me feeling totally exhausted and stressed out and I start to feel like I can’t cope and the last few days have been very hard for me and him probably to.

His tantrums are getting more frequent and lasting longer, plus he has been waking in the night.

I have got to the point of thinking that there is no point in taking him anywhere or trying to do anything with him, it always ends up in a tantrum and having to leave what ever we are doing and go home, here are three examples from just the last 4 days.

I took him to play football on the field, he was fine for a short amount of time, enjoying himself playing with me and his sister, and then he decides to pick up the ball and start walking towards the gate to the main road, when I called him back and told him to stay away from the road, he started screaming and carried on walking, this resulted in me having to carry him home as he was determined to go through that gate.

I took him to the shops with me, and I know that he hates shopping, and trust me I feel the same but unfortunately if you want to eat you have to shop, he started screaming as soon as we pulled into the car park and screamed all of the way around the shop whilst walking behind me, refusing any of my attempts to calm him, he didn’t stop crying until he was home and in bed.

and Yesterday I took him to the park after about 30mins he said he needed a wee so I took him in the leisure centre to use the toilet, he then refused to go and started whining at me, I took him to look at the pool which seemed to calm him and he picked up a leaflet, when we got back to the park he wanted to play, he couldn’t understand that to play he needed to put the leaflet down that he was holding with both hands and started screaming again, after trying to calm him and failing he followed me home screaming all of the way.

I really want to do things with him and I really want to play with him and do the things that he enjoys but it is starting to turn into such a battle whenever we do that I am utterly exhausted and ready to throw in the towel, it really doesn’t help that my husband is always at work, even on a weekend meaning that I don’t have his support, he has 2 days off work this week and they are both days that I am working.

I need to go to the shops shortly and then I am hoping that I can take my son to the park for a walk around, but since he woke up crying at 5.30am and didn’t stop until 8.30am I am not expecting it to be a very successful day.


Catch Up 20/07/14

Lots has happened and I haven’t blogged so not really sure where to start

The LA and Speech and Language and health all agreed that my son would benefit from the picture exchange communication system (pecs) but they also all refused to fund it, so while they were busy arguing with each other and my son was clearly getting more and more frustrated by not been able to communicate I googled it, printed and laminated a number of sheets of images, bought him a folder put a strap on it from one of my bags and he has been using this.

The first day that he had it he did this with it

and yes I did cry when he did it, and since then he has come on leaps and bounds with it, he has been using it daily, at home, school and out and about, he is clearly loving been able to communicate and not having the pressure to speak has had a surprising effect, he seems to be trying to talk more, and he is slowly slowly making more and more speech like sounds.

He has been seen by the Ed Psyche and she has assessed him and sent some recommendations to his new school, these are mainly things like using short direct language, not using to many words, not putting him in groups as he doesn’t cope well with it, letting him sit out of circle time if he is struggling, and encouraging him to communicate with the pecs, she is going to see him after he has been at school for a month or two to see how he is settling in and make further recommendations.

He has seen the community peadiatrician who assessed him and agreed with what the Ed Psyche said, she has referred him for blood tests to see if the reason for his delay could be down to any genetic conditions.

Both the Ed Psyche and Peadiatrician assessed him as been between 20 and 30 months, he is 4.5yrs so clearly he has a significant delay and it seems that the older he gets the bigger and more obvious the gap is between him and other children of the same age.

He has been poorly again, another sickness bug and ear infection which needed a trip to the docs, he lost more weight and after doing so well and getting to 32lb he went back to 28lb again. He is slowly starting to eat again, but the things he will eat seem to be getting fewer and fewer, I have bought him a pack of pecs pictures which are food items I am hoping that been able to ask for specific foods will increase the amount that he eats and today he used them to ask for boiled egg for lunch, so it is kinda working.

So going forward, I am waiting for the appointment for the blood tests for him, and I am waiting for him to start school in september, I am also looking for things for him to do over the summer which might build him up a bit, since both assessments said he had low muscle tone and poor gross motor skills.