Breakfast 


This is what breakfast is in our house 

Two slices of white bread with butter or sometimes cheese spread cut into squares with no crusts. 

Leaving the crusts on results in him taking just one bite out of each square as he tries to avoid crust. 

You might think I am pandering to him, but honestly,  I just want him to eat and if this is what it takes then so be it.

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K turned 7 today


K turned 7 today and he had some friends over for a very small party.

We asked Lab Rascals to join us to provide some scientific entertainment for him and his friends.

This is the first time that he has had any kind of a party and he was very excited when his friends turned up, we had his disco light on, and he had his new plasma ball out ready for when they came.

Lab Rascals gave all of the children lab coats and safety glasses before starting a variety of hands on experiments with dry ice, including blowing up balloons using it, adding it to hot water to make ‘smoke’ and making bubbles (pic below).

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The children also made some bath bombs which K is very excited to try out in the bath tomorrow.

Then I cooked them one of K’s favourite tea’s – Chicken nuggets, waffles and pasta shapes. K doesn’t like party food so it would have been a waste for me to do party food, finally they all had ice cream before getting the Lego out and spending a bit of time with his friends playing Lego and eating sweets before it was time for them to go home.

K really enjoyed himself, we didn’t have any arguing at all and apart from being excitable, they all behaved really well, and were interested in everything that Lab Rascals where explaining to them and what they were doing.

The Deep – Hull


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This morning I took K to The Deep, prior to visiting I had tweeting that we were planning to go and wanted to get there early to avoid any crowds, they sent me a DM to say that they open at 09.30am not 10.00am on a bank holiday and that they are usually really quiet for the first half an hour.

We had been up early anyway and were ready so it wasn’t difficult for us to get there for that time.

When we got there I used his DLA letter as proof of disability and this allowed me free entry as his carer, the ticket which you buy is valid for 12 months and can be used again and again, on any day but a bank holiday.

We were the 1st in, in fact we only saw 2 other people all the way round, everyone else was staff, it was a little weird at first I have never seen it so quiet.

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I had taken K to The Deep previously and it had always been busy, he had just ran from one thing to the other, not really interested in anything and just been a bit overwhelmed by everything and everyone around him, and just getting himself into a spin.

This time we were alone for the majority of the time, he spent time looking at the various computer screens, interactive displays and of course the fish and the penguins.

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He especially loved the dark area and the little jellyfish as they looked like they glowed, and the ice wall which made him giggle when he touched it.

I am so pleased that we went so early, the queue when we left was going out of the door, when we got there there wasn’t anyone in sight, the car park was empty.  Had they not sent me the message then I wouldn’t have known to go that early.

We were there for just over an hour, which isn’t a great amount of time but he had seen everything and the ticket is valid again and again so its not to bad really.

He pressed all the buttons, span all the wheels, looked at all the fish, and tried to hide from the sharks.

On the way out we picked up a new bath toy and some chocolate, so he is a happy boy today.

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Our Visit to Honeysuckle Farm nr Hornsea


Yesterday I took K to a farm for the afternoon, not the day, we didn’t take a picnic or do anything that might be stressful for him, we went for a couple of hours in the afternoon after we had had our usually lunch at home.

This was more than enough time for him, a couple of hours anywhere, doing anything is usually all he needs before he starts acting up and wanting to go home.

So we got there for just after 2pm, I got him a bucket of feed and we went to find the cows, K has been obsessed by them lately, and keeps mooing at people. He was excited to see the cows and gave them some of his animal feed. He even posed for a picture.

Then we went to see the ‘naughty’ goats, he laughed as they tried to take the feed out of the bucket instead of the little bit he was holding for them. He surprised me as I thought he might be a little intimidated by them due to there size and how pushy they could be to get the food, he seemed totally at ease.

A Horse and cart ride was next, he hid when the lady driving it asked if anyone had any questions and buried himself into me, but I told him it was fine, we could just listen and he relaxed again. He liked being told about the cows and about how the Bull was going to be moving to a new home soon.

Next we went to see the lambs and the sheep, he loved the lambs, he stroked them while he fed them and spent a long time there, hand-feeding them and patting them really gently on the head while he did so.

We went for a walk around the pond and around the maze, before I watched him play in the forts and run through the tunnels, and finally there was time for some ice cream and a cup of milk for K and a coffee for me in the cafe.

Overall it was a really lovely afternoon, K really enjoyed it, we didn’t have one meltdown or sad face all the time we were there, it was pretty quiet, probably because we got there late and missed the people that would have been there for the day, or a picnic.

We were able to walk around without feeling like it was crowded, there were plenty of other children there but he was able to play on his own in his own way. The animals all looked really well cared for and been able to feed them was a real highlight for K.

We will definitely be going back, maybe next time we can take K’s Dad with us, he missed it this time as he was at work.

Here’s a few of my pictures from the day (I took them so I am not in them)

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We went to the zoo today


We went to the zoo today, and it was so busy, K lasted about 3 hours before he got to his limit.

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We took his DLA letter and I took my Carer’s card so luckily we didn’t have to pay full price for what is essentially a couple of hours for us, but for most would be a full day out.

We didn’t see all the animals, we didn’t walk all of the way round, we didn’t go in the cafe’s and skipped through the shop at the end without stopping, but even so we did have a lovely day out.

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The sun was shining, the animals we did see where amazing, K really really liked the baboons, he spent ages watching them, he laughed at them as they chased each other around. He loved seeing the meerkats and spent a lot of time watching them play and dig holes.

The tiger enclosure and the whole area around there was so busy he shut down, we had to lead him away quickly to avoid it escalating into a full meltdown. After that he just wanted to leave, we didn’t see anymore animals.

Then on the way out they had set up a sensory area with bells and things to hit and feel and make noise with, he spent a long time in this area, this was a really good addition to the park and for a little autistic boy who was struggling to process just how busy it was it was a welcome relief.

Next time we are going to go on a dull or rainy day when the crowds will be smaller and we will be able to get round without as much stress.

Parents Evening


It was parents evening the other night  at K’s school and there were lots of positives

  1. He has gone up 2 levels in his reading after been on the same level for the whole of last year, he is finally making progress, he is trying really hard with this, both at home and at school and we are hoping he will make further progress before the end of the year.
  2. His spellings are consistently 8 or 9 out of 10, not 100% but consistently good, he is practising these every day with his 1:1 and we are reading and sounding them out each night. This is obviously  making a difference as we can see that he is really trying, and doing well.
  3. He has a really good social group set up and he is really making progress in this, he has started joining in the turn taking games and has been able to use cards to give his fellow pupils compliments. Considering he wouldn’t even look at the others when it started this is amazing, one day we are hoping he will start to talk to the others, but at the moment communication cards are doing the job.
  4. His Maths is really good, he has even been putting his hand up when other pupils have got something wrong on the white board and correcting them. He is working at close to the right level for Maths using visual aids to help him work things out, his science is also good, he really like the practical side of it.
  5. He completed a year 1 (a year behind where he is) phonics/ reading test on his own and got a lot of it right, showing that his comprehension is improving.

Some other things that came out of it is just how proud his 1:1 is of him and how hard she works with him. She helps him with everything but seems to know exactly when to stop and let him learn for himself, he is happy and confident around her.

The change in him over the last couple years is outstanding, he can now read (a little), he can hold a pen correctly, he can do sums, he is making friends and playing games with other children. I have to put that down to the extra support that he has at school without which I don’t think he would have been able to stay at a mainstream school.

This support is priceless, and getting rarer, its such a shame that people have to fight like they do to get their kids the support that they need, especially when you look at a child like K, who prior to having a 1:1 couldn’t cope at all with day to day school life, had no friends, had moments at school where he was very upset and unsettled, and even hit out at other children. Now he is happy, settled and doing really well, even if he is about 12 months behind his peers in most areas, looking at his work, his attitude towards it and the excellent support that he has:

I can hope that one day he will close that gap.

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